At 7 months old, we were diagnosed with a rare genetic condition called CGD. This makes us highly susceptible to severe infections from bacteria and fungi that are found all around us. Unfortunately, this condition has prevented us from participating in normal toddler activities such as playing on grass, going to the neighborhood park, and visiting the petting zoo.
Undergoing a Bone Marrow Transplant is the only cure for us.
We are actively searching for a donor to help us, so please consider registering to be a stem cell or bone marrow donor.
If you are a healthy individual between the age of 17-35, click on the link to join the Canadian Stem Cell Registry. The process to become a donor is simple. If you are a match, you will be asked to give blood which is processed to filter out the necessary blood cells required for transplant. If you are not from Canada, you can still help! The search is international; please refer to the International Donor page in the menu.
On August 7th, from 11AM - 3PM, we are hosting a swab drive at 765 Britannia Rd W #2, Mississauga, ON L5V 2Y1 (Canadian Blood Services Donor clinic). Come and pick up a swab kit as well as some refreshments and support our goal of getting more donors in the Stem Cell Registry.
CGD, Chronic Granulomatous Disease, is a rare genetic disease affecting 3-4 in every 1 million babies. The condition causes a mutation in specific white blood cells called neutrophils. As a result, Zoey and Misha cannot fight many types of bacterial and fungal infections. If left untreated, they may develop other health complications like granulomas throughout the body (e.g. liver, heart, lungs) and inflammatory bowel disease.
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